pilipili

 

PhD Projects

Healthy aging with long‑term health conditions: Measuring and understanding self-managementability in peopleover 70- the SWE PRISM-CC study

PhD-student: Ingrid Olsson

Ingrid OlssonOlderadultsare more likely to suffer fromone or morelong-termhealth conditions and often experience disruptive lifetransitions such as retirement andloss of family and friends, which can affect their ability to manage their health conditions ineverydaylife.Despite this, there is little research on older people's self-managementdifficultyand theirneed for self-managementsupport.The purpose of this project is to better understand howolder adultswith long-term health conditionsratetheir self-managementdifficultyand what support they need to maintain good health.


LiBaS- Life Balance: an important outcome for people with neuromuscular diseases

PhD-student: Jacqueline Leenders

The Life Balance study is being conductedin The Netherlands andhas two purposes:
1. Measuring Life Balance:Four dimensions of Life Balance can be distinguished: 1) Length, measured in time allocation to activities; 2)width, referring to theamountof activities and life roles; 3)depth, referring to the meaning of activities and life roles; 4)weight, which is the physical or mental burden of activitiesthat peopleexperience. Life Balance is subjectively defined by individuals in terms of how they chose to spend time in valued, obligatory and discretionary activities (Backman 2004). For people with chronic fatigue due to a disease, finding a new balance in what theycando andwantto do can be a struggle. Toomuchand too many strenuous activitiescan lead to overload and exhaustion, but too few meaningful activities can lead to an imbalance as well.
2. Undertaking a processevaluation of the Individual Managing Fatigue intervention delivered by community based Occupational Therapists


Sensitivity and specificity of a new screening tool for identifying the need of low vision rehabilitation (LVR) services among people with low vision.

PhD-student: Yaser Alnasery

This project aims to find the fewest combination of itemsthat could efficiently identify who need LVR services todevelop a screening tool.The screening tool aims to assist clinicians to refer clients – over 12 years old – who will most likely benefit from LVR services.

Low vision assistive technology devices for reading: a scoping review.

PhD-student:
Yaser Alnasery

Reading is one of the main occupations that people with low vision name when setting goals and priorities yet, devices to assist with this goal are often abandoned. While many Assistive Technology Devices (ATDs) are available, not much is known about how and why people with low vision are choosing their reading devices.This review aims to understand what ATDs people with low vision prefer to use for reading, as well as how and why these ATDs were selected.


Managing Fatigue in Parkinson`s Disease: Protocol for a Pilot Randomized Controlled Trial

PhD-student: Neda Alizadeh

Fatigue in Parkinson`s Disease (PD) significantly deteriorates patients’ ability to fulfill their daily roles and activities, especially social participation and employment.  Among the available treatments suggested in the literature to address fatigue in PD, the Managing Fatigue: A Six-Week Energy Conservation Course is an evidence-based occupational therapy (OT) program that aims to enable people with chronic conditions to manage the impact of fatigue on their everyday life. Despite the extensive proof of the program’s effectiveness in populations with multiple sclerosis and its potential to be expanded to other similar conditions, efficacy of this program has not been established in PD.  

This randomized controlled pilot study will evaluate the feasibility, and the preliminary effectiveness of the individual format of the Managing Fatigue program, named “Managing Fatigue: The Individual Program (MFIP)”.